Chippewa Falls (NEUROFIBROMATOSIS FIRST) - Kickin it in the Park for NF is Saturday May 19, 2018 at Irvine Park, Chippewa Falls in the main pavilion.
Registration and Fun starts @ 10 a.m. Walk at 11, lunch to follow
Preregister by April 27th and get a t-shirt at the walk
($20 in advance*/ $25 day of event, kids 4-12 $12 & 3 and under are free)
Neurofibromatosis (NF) is a common neurological genetic disorder that has no cure. It can cause tumors to form on the nerves anywhere in the body at any time.
Nearly three million people worldwide have NF and, yet you have probably never heard of it. It affects more people than Muscular Dystrophy, Tay-Sachs and Huntington's disease combined, and it is estimated to occur in one of every 2,500-3,000 births.
Neurofibromatosis can be a devastating disorder. It can cause learning disorders, scoliosis, seizures, severe pain, cancer, disfigurement, deafness, blindness, and those are just a few things that affect NF patient's daily, and sadly in the case of many it can also lead to death.
By getting involved you can give those affected by NF hope that the cure is not that far off in the future. Come and enjoy the food, music, fun, and prizes all while making a difference in the fight against NF.